What is it about?
We asked 211 adults with SCD and 331 parents of children with SCD between October 2014 and March 2016 in six hospitals across the U.S. about why they miss appointments. Most adults (87%) and parents of children (65%) miss clinic visits, with adults missing them more. Concerns about money, trouble understanding health information, and age around adolescents and young adults were important for missing appointments. Forgetting about appointments was the biggest issue with missing an appointment. Most people thought reminders would help either with phone calls or text messages. Therefore, age, concerns abut money, understanding health information, spirituality, and not having reminders, are important in missed clinic visits. Helping these issues could improve coming to visits for adults and children with SCD.
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Why is it important?
Clinic visits are very important in sickle cell disease (SCD) and we don't know why people miss visits. Missing clinic visits are costly to the healthcare system and lead to more emergency room visits and hospitalizations.
Perspectives
This article demonstrates the strength of using patient centered outcomes research clinical data research networks to evaluate important issues affecting individuals with rare diseases like sickle cell disease. We hope this research can help clinicians think about some important issues to consider among people who miss clinic visits, and other researchers to consider interventions that can improve clinic visits.
Robert Cronin
Vanderbilt University
Read the Original
This page is a summary of: Modifying factors of the health belief model associated with missed clinic appointments among individuals with sickle cell disease, Hematology, March 2018, Taylor & Francis,
DOI: 10.1080/10245332.2018.1457200.
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