What is it about?

The Discovery Interview methodology was evaluated as a tool for family and staff engagement with the goal of improving the experience of childhood cancer. Parents of children with cancer were interviewed and their story was recorded, transcribed,, de-identified, condensed and read back to clinical teams. Discussion followed with the teams about how to improve the service in relation to service processes, family support and individual clinical practice. This paper evaluated this methodology from the perpective of families and staff.

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Why is it important?

As a tool for family and staff engagement, Discovery Interviews were described as insightful and extremely valuable. Both families and staff can contribute to improving the experience of childhood cancer.

Perspectives

Discovery Interviews have been an ideal way to obtain a detailed and broad range of experience from families to feed into service improvement. Families describe the process of providing the stories as therapeutic and value the fact that we are listening to them and they can improve the story of other families to follow. Staff find the interviews directly relevant to their work and are often moved as the interviews reveal the perspectives of the families they care for.

Dr Penelope J Slater
Children's Health Queensland

Read the Original

This page is a summary of: Telling the story of childhood cancer: an evaluation of the Discovery Interview methodology conducted within the Queensland Children's Cancer Centre, Patient Intelligence, May 2016, Dove Medical Press,
DOI: 10.2147/pi.s105660.
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