The uncertainties families experience when one parent is in hospice.

What is it about?

No research has looked at the uncertainties of hospice patients and their families. We conducted a secondary analysis of existing data with hospice patients and their families to see what was said about uncertainty at the end of life.

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Why is it important?

Providers need to understand what patients and family members are uncertain about when providing end-of-life care. Additional research is needed to understand when uncertainty causes distress to anticipate when patients might need help.