What is it about?
It is difficult for people with aphasia to tell rehabilitation staff about life activities that matter to them. Our team developed the Life Interests and Values (L!V) Cards to make this communication easier. In this third research study about the L!V Cards, we examined how stable people's choices were in L!V Card interviews, especially compared to family members and friends who were asked to speak on their behalf.
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Why is it important?
We interviewed 26 people with aphasia about activities they wanted to do more in their lives. We used the Life Interests and Values (LIV) Cards to help and compared their responses to what loved ones thought they would prefer. Results showed that people with aphasia chose the same activities when they were interviewed a second time. Their loved ones, on the other hand, predicted only 69% the selected activities. This rate is similar to what we have found in other studies. Once again, we conclude that it is essential to ask people directly what they prefer, because even loved ones cannot know.
Perspectives
Many families in this study were able to resolve longstanding miscommunication about life activities. The LiV Card interview helped couples and families check assumptions and think about better routines and priorities. This was a wonderful outcome and one that we had not fully anticipated.
Katarina L Haley
University of North Carolina at Chapel Hill
Read the Original
This page is a summary of: Life activity choices by people with aphasia: repeated interviews and proxy agreement, Aphasiology, August 2018, Taylor & Francis,
DOI: 10.1080/02687038.2018.1506087.
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