What is it about?
Children’s hospices provide a range of services for babies, children and young people with life-limiting conditions, and their families, which includes care after the death. This study explores the emotional challenges of supporting families after the death of their child, and whilst caring for children’s bodies in hospice cool rooms – specially designed bedrooms that enable an alternative to mortuary facilities, where bodies can be cooled whilst laying in a ‘normal’ bed. An Internet-based questionnaire was sent to all practitioners to explore their perspectives of providing care to bereaved families whilst the child’s body was resident in the hospice. 94.9% (n=56) of staff responded. Two key themes were identified that represent the emotional challenges perceived by staff: the impact of deterioration of a child’s body and witnessing the acute grief of families. Practitioners seek to provide care that recognises the importance of family and demonstrates family centred care, as well as supporting families to deal with the changes that occur after death.
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Why is it important?
Despite care after death being a routine part of hospice care services for babies, children and young people, it has been subject to little research and practice guidance, which this study addresses. This study has led to a better understanding of the emotional challenges faced by practitioners caring for babies, children and young people after death. It has led to the development of recommendations on how practitioners can be supported in their role, though the provision of education and clinical supervision. This will a direct impact on how bereaved families are supported, as well as practitioners delivering this challenging element of hospice care.
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This page is a summary of: Sources of emotional challenge for practitioners delivering family centred care after the death of child: an inductive thematic analysis, Mortality, May 2021, Taylor & Francis, DOI: 10.1080/13576275.2021.1929897.
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