What is it about?
In this study, we surveyed 161 caregivers internationally to understand their experiences with the diagnosis and treatment of childhood apraxia of speech (CAS). Caregivers often noticed concerns early, yet the diagnostic process was lengthy. By the time their child received a CAS diagnosis, over half (51%) had seen three or more speech-language pathologists (SLPs). Caregivers reported wanting individual, in-person sessions lasting 31–45 minutes at least three times per week, but half of the sessions were under 30 minutes and provided once per week or less. This indicates a substantial gap between preferred and actual services. Additionally, 54% of children received therapy from several SLPs, suggesting that families may seek multiple providers increase the amount of speech therapy their child receives. Caregivers’ written responses highlighted five themes: barriers to accessing services, searching for accurate information, trial and error in finding SLPs with CAS expertise, the value of CAS-specific care, and the importance of support extending beyond therapy sessions.
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Why is it important?
These findings reveal challenges that may delay or limit appropriate speech-language pathology care for children with CAS. Caregivers frequently faced inconsistent information, delays in diagnosis, and difficulties finding SLPs with motor speech training. The mismatch between what caregiver preference and actual services suggests that many children may not be getting the care needed to support maximum progress. Several strategies could reduce caregiver frustration and improve outcomes for children: • improving professional education • strengthening communication with families • and providing clearer pathways to CAS-specialized services. Making sure that caregivers’ concerns are taken seriously, diagnosis is timely, and evidence-based treatment is accessible may help families navigate CAS with greater confidence.
Perspectives
Working with this international team that included both speech-language pathologists and caregivers was a great experience. The findings of the research paper highlight the challenges families experience with accessing sufficient speech therapy and the impact this has on the entire family unit.
Dr Donna Claire Thomas
The University of Sydney
Read the Original
This page is a summary of: Caregivers' Experiences of Assessment and Treatment for Their Child With Childhood Apraxia of Speech: An International Questionnaire Study, American Journal of Speech-Language Pathology, February 2026, American Speech-Language-Hearing Association (ASHA),
DOI: 10.1044/2025_ajslp-25-00358.
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