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This page is a summary of: My A–T pack: a qualitative study of the utility, acceptability, design, and content of a family-designed and owned information pack relevant to the lives of children and young people living with ataxia telangiectasia, Orphanet Journal of Rare Diseases, August 2025, Springer Science + Business Media,
DOI: 10.1186/s13023-025-03919-6.
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