What is it about?

This is a report of a service improvement pilot project undertaken at an inpatient autism service for adults with intellectual disabilities and severe challenging behaviours.

Featured Image

Why is it important?

It is important to listen to patients' views when they are in hospital. Sometimes it is difficult for staff to understand what people with intellectual disabilities are saying. This project tried to include the views of all the patients on an autism services ward. Some people were easier to understand than others but we managed to listen to everybody.


The study has demonstrated that it is possible to include patients' voices in their psychological formulation. For those with mild intellectual disabilities and mild autism spectrum disorder, this has been simple and extremely fruitful. For those with severe intellectual disability and severe autism spectrum disorder this has been more resource intensive and the results have been more tentative. Despite this, it has been demonstrated that it is possible to include the voices of all patients to some extent.

Gareth Rowe
Durham University

Read the Original

This page is a summary of: Bringing ‘patient voice’ into psychological formulations of in-patients with intellectual disabilities, autism spectrum disorder and severe challenging behaviours: report of a service improvement pilot, British Journal of Learning Disabilities, April 2013, Wiley, DOI: 10.1111/bld.12026.
You can read the full text:




The following have contributed to this page