Patient Experience of Surveillance for Muscle-Invasive Bladder Cancer

What is it about?

The article discusses the results of a patient survey aimed at understanding the follow-up strategies for those treated with radical cystectomy or radical radiotherapy for muscle-invasive bladder cancer in the UK. The survey found that most participants had scans and blood tests at least annually in the first five years, but many had not had urethroscopy or urethral washing since their surgery. Additionally, many participants reported not having a cancer nurse specialist or any contact with one in over a year. The authors suggest that improved follow-up strategies and cancer nurse specialist support are crucial for improving the quality of life for those affected by bladder cancer. [Some of the content on this page has been created by AI]

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Why is it important?

This research is important because it highlights the need for robust follow-up strategies for patients who have undergone radical cystectomy or radical radiotherapy for muscle-invasive bladder cancer. The study found that many participants were not receiving the recommended follow-up care, which increases the risk of recurrence and decreases the chances of early detection. Key Takeaways: 1. There were ~5000 deaths from bladder cancer annually in the UK, with a 10-year survival rate of 46%. 2. The study found that many participants were not receiving the recommended follow-up care, which increases the risk of recurrence and decreases the chances of early detection. 3. The majority of participants reported scans being performed at least annually in the first five years after surgery, although 13% reported scans being performed significantly less frequently or not at all. Similarly, 77% of participants reported having blood tests at least annually, with 22% reporting these significantly less frequently or not at all. 4. Many participants reported not having a cancer nurse specialist (CNS) and no contact with their CNS in >12 months. 5. The study highlights the need for improved follow-up strategies, better support for cancer nurse specialists, and more emphasis on the impact of bladder cancer on patients' quality of life, including sexual function and mental health.