What is it about?

Participatory research in a day center for persons with intellectual disabilities (ID) describes the processes and organizational characteristics that facilitate supported decision-making (SDM) by persons with ID, and the beneficial results of SDM.

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Why is it important?

The UN Convention on the Human Rights of Persons with Disabiliities mandates supported decision-making for all persons with disabilities, but how to go about this process has not been sufficiently understood. This article provides specific methods and empathic strategies staff and organizations can use to support the self-determined decision-making of persons with ID, with plentiful examples. In addition, staff and client participants describe the benefits they experienced as they participated together in supportive decision-making.

Perspectives

This article is helpful for organizational leaders, staff, and parents who care for persons with intellectual disabilities who want to understand more about how to support self-determined decision-making. The examples indicate how valuable supported decision-making is for both the decision-making and the supporter. Organizational characteristics that facilitate supported decision-making also are described so leaders can advance their organization's capacity to fulfill the human rights of their clients with ID.

Professor Katherine Tyson McCrea
Loyola University Chicago

Read the Original

This page is a summary of: “Help me to decide”: A study of human rights-based supported decision making with persons with intellectual disabilities., American Journal of Orthopsychiatry, March 2024, American Psychological Association (APA),
DOI: 10.1037/ort0000724.
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