What is it about?
This study looks at the experiences of young couples when one partner is living with Sickle Cell Disease (SCD). Using a systemic, family-centered lens, it highlights how couples engage with the healthcare system and identifies ways care practices can be improved.
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Why is it important?
As patients with SCD transition beyond pediatric care, it is essential to establish best practices that meet their unique needs. By considering care through a family-centered perspective, this research emphasizes the vital role of partners and caregivers in supporting patients—offering guidance for more holistic, effective healthcare practices.
Read the Original
This page is a summary of: A necessity of disease management: Unpacking young adult couple experiences of accessing care in the management of sickle cell disease., Families Systems & Health, August 2025, American Psychological Association (APA),
DOI: 10.1037/fsh0001011.
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