Project

Pelvic Congestion Syndrome - Pelvic Venous Disorders

Mark Whiteley

What is it about?

Although virtually everybody has heard of varicose veins in the legs, very few people understand pelvic varicose veins. This project is aimed at understanding pelvic varicose veins and finding the best treatments for the condition.

Why is it important?

Pelvic varicose veins cause two main problems, "pelvic congestion syndrome" or chronic pelvic pain, and varicose veins of the legs and intimate areas. Millions of women suffer needlessly from chronic pelvic pain, because so few doctors understand or look for pelvic varicose veins. Many doctors treating leg varicose veins do not consider pelvic veins as a cause. It is because they ignore the pelvic varicose veins that so many people think that "varicose veins always come back".

Perspectives

I got interested in pelvic congestion syndrome and pelvic varicose veins in 2000, when a patient came to me with recurrent varicose veins. She had seen several famous doctors in London and had undergone many varicose vein operations, all of which had failed.

When I examined her, it was clear that the varicose veins were not coming from her legs, but were emerging from her pelvis next to her vulva and vagina. Further investigation showed us that she had pelvic varicose veins causing her leg varicose veins.

As a doctor, I already knew that men could get varicose veins around the testicles. It turns out women get varicose veins and their ovaries, but doctors ignore this as they are deep inside.

As our research continued, we found many worry statistics such as: - 1 in 6 women with leg varicose veins have them arising from the pelvis, but most doctors treating varicose veins never check for pelvic varicose veins! - 1 in 30 men have the same problem, and until we recently published this nobody ever checked men with leg varicose veins for pelvic varicose veins. - One in three (30%) of women with chronic pelvic pain have this due to pelvic varicose veins (or "pelvic congestion syndrome") but are usually told that there is nothing wrong with them or they have "endometriosis".

So whether we are talking about the millions of women (and also a great number of men) who have pelvic pain or other public symptoms due to varicose veins, or the millions of women and men who have leg varicose vein treatments which will fail because the doctor treating them did not check the pelvic veins, it is clear that this is a major area of healthcare that is frequently overlooked.

Audience briefings7 total

Resources21 total

Who is involved?