All Stories

  1. The human crisis in cancer: a Lancet Oncology Commission
  2. Exploring and understanding different perspectives on the experience of engaging with death doulas and those in activity-aligned roles toward the end of life: An integrative review
  3. Culture and context shapes spiritual distress: A phenomenological study of spiritual distress in hospitalised people with advanced COPD in India
  4. How, when and why is emotional support delivered using videoconferencing by adult palliative care services successful? A realist synthesis
  5. Developing research collaborations and building capacity in palliative and end-of-life care in the North West Coast of England: the PalCaRe-NWC partnership
  6. Peer review and Palliative Medicine : Guiding reviewers’ contributions to ensuring high quality publications
  7. The needs, preferences, and experiences of LGBT+ people living with dementia: A systematic review with thematic synthesis
  8. OP-10 How, when, and why is video-enabled emotional support in palliative care successful?: A realist review
  9. Implementing Namaste Care in nursing care homes for people with advanced dementia: a systematically constructed review with framework synthesis
  10. Suffering and loss in Lewy body dementia: Applying a palliative care lens to a longitudinal narrative study
  11. Improving Hospital Palliative Care Between COVID-19 Waves: A Retrospective Cohort Study
  12. Why are organisational approvals needed for low-risk staff studies in the UK? Procedures, barriers, and burdens
  13. Exploring the contribution of cancer palliative care development toward alleviating the human crisis of suffering in low- and middle-income countries: A framework synthesis protocol
  14. The Lived Experiences of Hospice Healthcare Workers Caring for Adolescents and Young Adults With Advanced Cancer: An Interpretative Phenomenological Analysis
  15. Living and dying between cultural traditions in African & Caribbean Heritage families: a constructivist grounded theory
  16. Understanding barriers and facilitators to palliative and end-of-life care research: a mixed method study of generalist and specialist health, social care, and research professionals
  17. How clinicians recognise people who are dying: An integrative review
  18. Researchers’ experiences of the design and conduct challenges associated with parallel-group cluster-randomised trials and views on a novel open-cohort design
  19. Implementation of an Advance Care Planning Intervention in Nursing Homes: An International Multiple Case Study
  20. Changes in Participant Interactions. Using Focus Group Analysis Methodology to Explore the Impact on Participant Interactions of Face-to-Face Versus Online Video Data Collection Methods
  21. Mixed Method Research in Palliative Care
  22. Writing for the world: Enhancing engagement and connection with an international audience
  23. Living and Dying between Cultural Traditions in African & Caribbean Heritage Families: A Constructivist Grounded Theory
  24. The views and perceptions of training in physical health care amongst mental health nurses, managers of mental health nurses and trainers: A systematically constructed narrative synthesis
  25. Health care professional recruitment of patients and family carers to palliative care randomised controlled trials: A qualitative multiple case study
  26. ‘Thank goodness you’re here’. Exploring the impact on patients, family carers and staff of enhanced 7-day specialist palliative care services: A mixed methods study
  27. A grounded theory of interdependence between specialist and generalist palliative care teams across healthcare settings
  28. The experience of family carers for people with moderate to advanced dementia within a domestic home setting: a systematically constructed narrative synthesis
  29. A Meta-Ethnographic Review of Paid Staff and Volunteers Working together in Palliative Care
  30. Stakeholder engagement as a strategy to enhance palliative care involvement in intensive care units: A theory of change approach
  31. Sense of Coherence at End of Life in Older People
  32. What are the digitally enabled psychosocial interventions delivered by trained practitioners being offered to adults with life-shortening illnesses and palliative care needs and their informal and professional caregivers? A scoping review
  33. Adaptation and multicentre validation of a patient-centred outcome scale for people severely ill with COVID (IPOS-COV)
  34. The impact of the mySupport advance care planning intervention on family caregivers’ perceptions of decision-making and care for nursing home residents with dementia: pretest–posttest study in six countries
  35. Understanding the role and deployment of volunteers within specialist palliative care services and organisations as they have adjusted to the COVID-19 pandemic: A multi-national EAPC volunteer taskforce survey
  36. Correction: Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall)
  37. A family carer decision support intervention for people with advanced dementia residing in a nursing home: a study protocol for an international advance care planning intervention (mySupport study)
  38. Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall)
  39. Palliative and end-of-life care in intensive care units in low- and middle-income countries: A systematically constructed scoping review
  40. Symptom Control and Survival for People Severely ill With COVID: A Multicentre Cohort Study (CovPall-Symptom)
  41. Symptom management in people dying with COVID-19: multinational observational study
  42. A tribute to Derek Doyle and Cynthia Goh
  43. A tribute to Derek Doyle and Cynthia Goh
  44. The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries: A qualitative meta-synthesis
  45. Developing country-specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers
  46. Change in Activity of Palliative Care Services during the Covid-19 Pandemic: A Multinational Survey (CovPall)
  47. Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study
  48. The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study
  49. 13 Digitally-enabled psychosocial interventions in palliative care: a scoping review
  50. The impact on emotional well-being of being a palliative care volunteer: An interpretative phenomenological analysis
  51. Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data
  52. Exploring Specialist Palliative Care Practitioner Perspectives on the Face Validity of the Attitude to Health Change Scales in Assessing the Impact of Life-limiting Illness on Patients and Carers
  53. Experiences of staff providing specialist palliative care during COVID-19A multiple qualitative case study
  54. Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study
  55. Prohibit, Protect, or Adapt? The Changing Role of Volunteers in Palliative and Hospice Care Services During the COVID-19 Pandemic. A Multinational Survey (Covpall)
  56. A Systematic Review with Thematic Synthesis of the Experience of Hospitalization in People with Advanced Chronic Obstructive Pulmonary Disease
  57. What are the Emotional Experiences of Being a Volunteer in Palliative and End-of-Life Care Settings? A Systematic Review and Thematic Synthesis
  58. Smiles behind the masks: A systematic review and narrative synthesis exploring how family members of seriously ill or dying patients are supported during infectious disease outbreaks
  59. A good death in the child with life shortening illness: A qualitative multiple-case study
  60. Exploring the experiences of living with Lewy body dementia: An integrative review
  61. Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services
  62. Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data
  63. Prohibit, protect, or adapt? The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall)
  64. ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)
  65. What mediates end-of-life care choices?
  66. Transitions in Palliative Care Provision Across Healthcare Settings in the US: A Grounded Theory of Interdependence Between Specialist and Generalist Palliative Care Teams (SCI932)
  67. Constructing a new role for family carers and volunteers providing care towards the end of life: an action research approach exploring a new model of hospice care
  68. The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall)
  69. What should we report? Lessons learnt from the development and implementation of serious adverse event reporting procedures in non-pharmacological trials in palliative care
  70. Exploring the experience of recurrence with advanced cancer for people who perceived themselves to be cancer free: a grounded theory study
  71. Applying an Analytical Process to Longitudinal Narrative Interviews With Couples Living and Dying With Lewy Body Dementia
  72. Perspectives on COVID-19 and palliative care research
  73. Protocol for a systematic review on the experience of informal caregivers for people with a moderate to advanced dementia within a domestic home setting
  74. Protocol for a systematic review on the experience of informal caregivers for people with a moderate to advanced dementia within a domestic home setting
  75. ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multi-national survey (CovPall)
  76. The challenges of caring for people dying from COVID-19: a multinational, observational study of palliative and hospice services (CovPall)
  77. Understanding and addressing challenges for Advance Care Planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services
  78. Nonparametric time series summary statistics for high-frequency accelerometry data from individuals with advanced dementia
  79. Exploring the psychological impact of life‐limiting illness using the Attitude to Health Change scales: A qualitative focus group study in a hospice palliative care setting
  80. Peer support to maintain psychological wellbeing in people with advanced cancer: findings from a feasibility study for a randomised controlled trial
  81. Understanding the Outcomes of Supplementary Support Services in Palliative Care for Older People. A Scoping Review and Mapping Exercise
  82. Communication patterns in nurse-led chemotherapy clinics: A mixed-method study
  83. Handbook of Theory and Methods in Applied Health Research
  84. Protocol for a systematic review on the experience of informal caregivers for people with a moderate to advanced dementia within a domestic home setting
  85. Aims, actions and advance care planning by district nurses providing palliative care: an ethnographic observational study
  86. COVID-19: A personal perspective
  87. Hospital-based social workers’ perceptions of generalist- and specialist-level palliative social work activities
  88. ‘It’s not what they were expecting’: A systematic review and narrative synthesis of the role and experience of the hospital palliative care volunteer
  89. Peer Mentors for People with Advanced Cancer: Lessons Learnt from Recruiting and Training Peer Mentors for a Feasibility Randomized Controlled Trial
  90. Do journals contribute to the international publication of research in their field? A bibliometric analysis of palliative care journal data
  91. Perspectives of elders and their adult children of Black and minority ethnic heritage on end-of-life conversations: A meta-ethnography
  92. Exploring a New Model of End-of-Life Care for Older People That Operates in the Space Between the Life World and the Healthcare System: A Qualitative Case Study
  93. A group intervention to improve quality of life for people with advanced dementia living in care homes: the Namaste feasibility cluster RCT
  94. A four-stage process for intervention description and guide development of a practice-based intervention: refining the Namaste Care intervention implementation specification for people with advanced dementia prior to a feasibility cluster randomised trial
  95. What Do We Mean by Palliative Care?
  96. Communicative constructions of person-centred and non-person-centred caring in nurse-led consultations
  97. Understanding the bereavement experience of grandparents following the death of a grandchild from a life‐limiting condition: A meta‐ethnography
  98. Mixed Method Research in Palliative Care
  99. How Grandparents Experience the Death of a Grandchild With a Life-Limiting Condition
  100. Perceptions of a Good Death in Children with Life-Shortening Conditions: An Integrative Review
  101. Case series and practice reviews: Dregs at the bottom of the evidence pile or an essential link between frontline practice and research?
  102. Improving living and dying for people with advanced dementia living in care homes: a realist review of Namaste Care and other multisensory interventions
  103. Namaste Care in nursing care homes for people with advanced dementia: protocol for a feasibility randomised controlled trial
  104. Care Home Life and Identity: A Qualitative Case Study
  105. Quality of life trends in people with and without cancer referred to volunteer provided palliative care services (ELSA): A longitudinal study
  106. Peer support for people with advanced cancer
  107. ‘Being with’ or ‘doing for’? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA)
  108. 47 Developing a study intervention: a realist review and consensus workshops to develop the namaste care intervention for people with advanced dementia prior to a feasibility study using a cluster randomised controlled trial in nursing care homes
  109. Using the ‘Social Marketing Mix Framework’ to explore recruitment barriers and facilitators in palliative care randomised controlled trials? A narrative synthesis review
  110. Clear, simple, precise, meaningful: A quick guide to writing for publication
  111. Mixed Method Research in Palliative Care
  112. Editorial
  113. A revised model for coping with advanced cancer. Mapping concepts from a longitudinal qualitative study of patients and carers coping with advanced cancer onto Folkman and Greer's theoretical model of appraisal and coping
  114. Ward social workers’ views of what facilitates or hinders collaboration with specialist palliative care team social workers: A grounded theory
  115. Meeting abstracts from the 4th International Clinical Trials Methodology Conference (ICTMC) and the 38th Annual Meeting of the Society for Clinical Trials
  116. Are nurse-led chemotherapy clinics really nurse-led? An ethnographic study
  117. Coping Well with Advanced Cancer: A Serial Qualitative Interview Study with Patients and Family Carers
  118. Palliative care research: State of play and journal direction
  119. How effective are volunteers at supporting people in their last year of life? A pragmatic randomised wait-list trial in palliative care (ELSA)
  120. Erratum to: Protocol for the End-of-Life Social Action Study (ELSA): a randomised wait-list controlled trial and embedded qualitative case study evaluation assessing the causal impact of social action befriending services on end of life experience
  121. Protocol for the End-of-Life Social Action Study (ELSA): a randomised wait-list controlled trial and embedded qualitative case study evaluation assessing the causal impact of social action befriending services on end of life experience
  122. EAPC2016: Abstracts
  123. Strategies designed to help healthcare professionals to recruit participants to research studies
  124. Generalist-Specialist Palliative Care Collaboration
  125. A poststructural rethinking of the ethics of technology in relation to the provision of palliative home care by district nurses
  126. Palliative Medicine journal: What have we done, where should we be going and why?
  127. Quality care as ethical care: a poststructural analysis of palliative and supportive district nursing care
  128. Nevasic audio program for the prevention of chemotherapy induced nausea and vomiting: A feasibility study using a randomized controlled trial design
  129. The impact of social action services on end of life experience
  130. Evaluation of an advance care planning education programme for nursing homes: A Longitudinal study
  131. INTERNATIONAL PALLIATIVE CARE JOURNAL CLUB ON TWITTER: EXPERIENCE SO FAR
  132. Abstracts of the 8th World Research Congress of the European Association for Palliative Care (EAPC)
  133. THE VALUE OF LONGITUDINAL INTERVIEWS IN EXPLORING COPING STRATEGIES OF PATIENTS WITH ADVANCED CANCER AND THEIR CARERS
  134. HEALTH PROFESSIONALS’ PERSPECTIVES ABOUT ADVANCE CARE PLANNING IN PARKINSON'S DISEASE: A QUALITATIVE STUDY
  135. ADVANCE CARE PLANNING TRAINING IN NURSING HOMES: A SUCCESS STORY?
  136. Palliative care research: Has it come of age?
  137. Translation and psychometric assessment of the Persian version of the Rhodes Index of Nausea, Vomiting and Retching (INVR) scale for the assessment of chemotherapy-induced nausea and vomiting
  138. Protocol for a longitudinal qualitative interview study: maintaining psychological well-being in advanced cancer—what can we learn from patients’ and carers’ own coping strategies?: Table 1
  139. ‘Busyness’ and the preclusion of quality palliative district nursing care
  140. Supporting and promoting palliative care for older people
  141. What helps healthcare professionals to recruit people to research studies?
  142. Palliative Medicine: Looking to the future
  143. Abstracts of the 7th World Research Congress of the European Association for Palliative Care (EAPC)
  144. The views of patients with severe chronic obstructive pulmonary disease on advance care planning: A qualitative study
  145. Caring for the carers? An observational study of the role of the district nurse in palliative care
  146. Observing district nurses roles in palliative care: an understanding of aims and actions
  147. How to approach advance care planning in severe COPD: a qualitative study of patients' views
  148. Using observation as a data collection method to help understand patient and professional roles and actions in palliative care settings
  149. P221 Advance care planning in chronic obstructive pulmonary disease: a qualitative study of patients' views
  150. The evaluation of complex interventions in palliative care: An exploration of the potential of case study research strategies
  151. What Do We Mean by Palliative Care
  152. Nurses' feelings of 'ownership' of palliative care patients: findings from a qualitative case study
  153. New authors’ guidelines for Palliative Medicine: More work for authors, reviewers and editors or an essential tool?
  154. District nurses’ role in palliative care provision: A realist review
  155. What about breastfed babies?
  156. Improving training in spiritual care: a qualitative study exploring patient perceptions of professional educational requirements
  157. Patterns of Access to Community Palliative Care Services: A Literature Review
  158. Implementation and impact of the Gold Standards Framework in community palliative care: a qualitative study of three primary care trusts
  159. What influences referrals within community palliative care services? A qualitative case study
  160. Judgements about fellow professionals and the management of patients receiving palliative care in primary care: a qualitative study
  161. Evaluating partnership working: lessons for palliative care
  162. Living with a venous leg ulcer: a descriptive study of patients’experiences
  163. Case studies: A research strategy appropriate for palliative care?