PRO-Kid Quality of Life Tool - A Patient and Caregiver Perspective

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It is clear that earlier diagnosis and treatment of kidney disease, often beginning in childhood, can be positively impactful on sustaining native kidney health, making pediatric clinical trials all the more important. Beyond measuring the safety and efficacy of therapies, it is critical to also understand the impact of the therapy on a child's quality of life. I commend the creators of the PRO-Kid Tool for shaping a tool that can be used for this purpose, and including patients in the process. However, the majority of the patients and caregivers involved in this process were in later stages of CKD at the time. In order to use this tool for clinical studies that include patients earlier in CKD stages, it is important that researchers and drug developers also understand their experiences and quality of life.

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