An Evolving Continuum of Care for Kidney Disease Patients
What is it about?
For patients, the most desired kidney replacement therapy is a kidney transplant. The challenge for patients is navigating the sequence of activities from initial identification of kidney-related issues, such as hypertension, diabetes, or proteinuria, to dialysis to ultimately receiving a kidney transplant. Minorities and patients with low socioeconomic status face additional challenges, such as insurance coverage issues, lack of a support network, poverty, and limited education about transplantation.
Why is it important?
Today, minority and other high-risk patients are participating in health care deliberations and innovations in substantive and meaningful ways across nearly every sector in health care. These include the federal government, the private sector, academia, and primary nonprofit stakeholder organizations. I am very proud of the fact that, every week, the organization that I help to lead, the American Association of Kidney Patients (AAKP), is contacted by medical professionals and researchers seeking specific types of patients for more direct involvement in initiatives aimed at improving patient outcomes, especially among minorities.
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