Publication
Paving the way for Brazil’s first national rare diseases registry: the RARAS data governance model
Filipe Andrade Bernardi, Vinícius Costa Lima, Mateus Alonso, Bibiana Mello de Oliveira, Claudia Fernandes Lorea, José Carlos Moraes, Victor Cassão, Giovane Soares, João Baiochi, André Vinci, Mariane de Souza, Yasmin Araújo, Diego Bettiol Yamada, Guilherme Lourenço Annelli, Victor Evangelista de Faria Ferraz, Rui Rijo, Têmis Maria Félix, Domingos Alves
BMC Digital Health, October 2025, Springer Science + Business Media
DOI: 10.1186/s44247-025-00200-5