What is it about?

The SAUDI PH registry is a prospective follow of patients with pulmonary hypertension (group1 and 4, PAH & CTEPH), to study their clinical characteristics and outcome. Patients are enrolled in this registry after a comprehensive diagnostic assessment based on the international guidelines. The treatment is also based on the ERS/ESC risk assessment parameters. PAH patients in SAUDI PH register are much younger at the time of diagnosis than the western registry. Median age is 32 years. Majority (74%) of patients received combination therapy. There was significant improvement in WHO FC (baseline = 43.7% in WHO FC I/II, Last visit = 73.9%in WHO FC I/II). Cumulative probabilities of survival for 1, 2 & 3 years, was , 95.6%, 89.2% and 74,6% respectively).

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Why is it important?

The first and largest prospective PH registry in Saudi Arabia. Much younger age at diagnosis compared to international registries. Majority are on combination therapy indicating strict evidence-based practice. Better survival rate.

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This page is a summary of: Chronic thromboembolic pulmonary hypertension in Saudi Arabia: preliminary results from the SAUDIPH registry, ERJ Open Research, April 2020, European Respiratory Society (ERS),
DOI: 10.1183/23120541.00218-2019.
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