What is it about?
A case vignette describes an encounter with a family in which an older child has acted as a sibling donor to a sick younger sibling. It is evident that the process has taken its toll on the well-being of the older child and has created tensions within the family. What then are the ethical boundaries and responsibilities of researchers who enter the private domain of the family?
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Why is it important?
It adds to the ethics of qualitative research in biomedicine.
Perspectives
In my view, there was hardship in the family we investigated. And therefore it also created a difficult situation during the joint family interview, however interesting to think about from a research ethics point of view.
Christoph Rehmann-Sutter
Institute for History of Medicine and Science Studies, University of Lübeck, Germany
Read the Original
This page is a summary of: Interviewers as Intruders? Ethical Explorations of Joint Family Interviews, Journal of Empirical Research on Human Research Ethics, July 2019, SAGE Publications,
DOI: 10.1177/1556264619857856.
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