What is it about?
We report the development of a disease-specific measure of sickle cell disease stigma. We found similar psychometric properties for an 11-item measure across two different samples of patients and also report metrics of the scale's validity and internal consistency.
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Why is it important?
General measures of stigma do not fully capture the unique experiences of adults living with sickle cell disease. Our hope is that a disease-specific measure can help us better understand the role of stigma in adjustment to sickle cell.
Perspectives
It was a pleasure to work with the IMPORT investigators, all of whom were affiliated with Schools of Medicine at either Johns Hopkins or Howard University. The project was the first of a series I conducted to learn more about the clinical implications of sickle cell disease stigma.
Shawn Bediako
University of Maryland, Baltimore County
Read the Original
This page is a summary of: The Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust study, Journal of Health Psychology, July 2014, SAGE Publications,
DOI: 10.1177/1359105314539530.
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