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Why is it important?
The results of this are article are relevant to the new treatment of nusinersen (Spinraza) as the concern for increased communication between medical team and families remins as does the need for all healthcare professionals to understand the disease.
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This page is a summary of: The Experience of Families With Children With Spinal Muscular Atrophy Type I Across Health Care Systems, Journal of Child Neurology, July 2017, SAGE Publications,
DOI: 10.1177/0883073817716853.
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