What is it about?

The aim of this study was to explore family caregivers' experiences with palliative care for a close family member with severe dementia in long-term care facilities.

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Why is it important?

An increasing number of dementai-related deaths occur in long-term care facilities; therefore, it is critical to understand how healthcare professionals support and care for residents with dementia and their families at the end of life.

Perspectives

The findings of this study contribute ta an understanding of how family caregivers experience ongoing responsibility for the palliative care provided to their close family member in long-term care facilities. Healthcare professionals need to have a deeper understanding of the impact of these burdensome experiences on the family to be able to support them.

May Helen Midtbust

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This page is a summary of: Separation characterized by responsibility and guilt: Family caregivers’ experiences with palliative care for a close family member with severe dementia in long-term care facilities, Dementia, January 2020, SAGE Publications, DOI: 10.1177/1471301219898341.
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