What is it about?
Qualitative thematic analysis of blogs from individuals caring for a family member with dementia near the end of life.
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Why is it important?
The blogs contained information about the needs of family members during a difficult time of life for their loved one with dementia. For example, they encountered challenges with the quality of health care (hospitals and nursing homes), numerous transfers to various care facilities including emergency rooms, difficulty communicating with providers, and not being prepared for the actual experience of watching their loved one die.
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This page is a summary of: “At the End We Feel Forgotten”: Needs, Concerns, and Advice from Blogs of Dementia Family Caregivers, Clinical Nursing Research, August 2019, SAGE Publications,
DOI: 10.1177/1054773819865871.
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