What are the research priorities for idiopathic intracranial hypertension? A priority setting partnership between patients and healthcare professionals

What is it about?

Idiopathic Intracranial Hypertension (IIH) is rare disease and is under-researched. The aim was to engage all those with experience of IIH, whether they be patients, doctors, nurses or carers to determine research priorities for this disease. The James Lind Alliance is an organisation that ensures the process for a priority setting partnership is robust, and it was through this process that the top 10 research priorities for adult IIH was determined.

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