Lupus patient decisions about clinical trial participation: a qualitative evaluation of perceptions, facilitators and barriers

What is it about?

Lupus patients participated in discussion groups led by a moderator and were asked questions regarding clinical trial participation. Patients self-identifying as African American, Hispanic/Latino, Native American, or Caucasian were included, with a focus on ensuring representation by minority patients. Attitudes and beliefs were discussed as well as factors that eased or hindered clinical trial participation. Participants did not express distrust of clinical research and were well informed about lupus, outcomes,and how clinical research can result in improved treatments. Streamlined paperwork and study visits, assistance with childcare and travel, and provision of prompt feedback are items that could be addressed, possibly improving study participation for minority and all SLE patients.

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