What is it about?

2 mothers in Bedford, United Kingdom started their journey to support other parents who have children with neurodevelopmental disorders. They formed a support group and started involving other professionals including doctors, local education authorities and nurses. This story is about their incredible journey along with a paediatrician.

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Why is it important?

Co-production work between healthcare professionals and patients/ carers are often helpful to each other in improving their knowledge and experience. This can improve quality of service and develop more opportunities. We feel that by sharing our experience, we can encourage others to develop similar support services.

Perspectives

I, as a doctor working with children, felt immensely proud to be a part of this project. I feel more healthcare professionals should involve in similar parent/ carer forums.

Tapomay Banerjee
Cambridgeshire community services NHS trust

Read the Original

This page is a summary of: Spectrum Support: Co‐working between children with attention deficit hyperactivity disorder/autism spectrum disorder, their families and paediatricians, Journal of Paediatrics and Child Health, April 2021, Wiley,
DOI: 10.1111/jpc.15502.
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Contributors

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