What is it about?
We have laid out a process for developing adult health care guidelines. The present guidelines are more than 15 years old. The lack rigorous evaluation. Children’s guidelines exist through the AAP.
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Why is it important?
Trisomy 21, Down syndrome, is the most common genetic cause of intellectual disability. People with Down syndrome are living longer and are making contributions to our society. The ability to perform well depends in part upon good health care. Prevention saves health dollars. Having well vetted guidelines will be a major contributor to good health care.
Perspectives
All, or nearly all, healthcare providers see individuals with Down syndrome. Knowing what preventative strategies to use will help this population and which ones not to use may also save healthcare dollars. This article starts the process of developing evidence-based guidelines.
Dr David S Smith
Medical College of Wisconsin
Read the Original
This page is a summary of: Co-occurring medical conditions in adults with Down syndrome: A systematic review toward the development of health care guidelines, American Journal of Medical Genetics Part A, November 2017, Wiley,
DOI: 10.1002/ajmg.a.38512.
You can read the full text:
Contributors
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