What is it about?
QoL is affected in sickle cell disease. In periods of ill health, a proxy maybe necessary to give health history and provide care. Information given by the caregiver has to be accurate as it guides the treatment modality.
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Why is it important?
Parent proxy are important historian in health care, especially with unwell children.
Perspectives
Parents' perspectives maybe different from their children. This discordance may affect health history and assessment if the parent proxy over or under-report keep domains.
Mrs. Antoinette Odette Barton-Gooden
University of the West Indies
Read the Original
This page is a summary of: Level of agreement between adolescents’ self‐assessment and parent proxy report of health‐related quality of life in adolescents with sickle cell disease, Pediatric Blood & Cancer, February 2020, Wiley,
DOI: 10.1002/pbc.28198.
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