All Stories

  1. Obesity in the global haemophilia population: prevalence, implications and expert opinions for weight management
  2. Validation of the Haemophilia & Exercise Project-Test-Questionnaire (HEP-Test-Q)-An instrument for the assessment of subjective physical functioning in children with haemophilia
  3. The Kids' immune thrombocytopenia Tool is not suitable for assessing quality of life in children with platelet function disorders
  4. Prophylactic bypassing agent use before and during immune tolerance induction in patients with haemophilia A and inhibitors to FVIII
  5. Pattern of bleeding in a large prospective cohort of haemophilia A patients: A three-year follow-up of the AHEAD (Advate in HaEmophilia A outcome Database) study
  6. Study of physical function in adolescents with haemophilia: The SO-FIT study
  7. The impact of clinical practice on the outcome of central venous access devices in children with haemophilia
  8. Treatment burden, haemostatic strategies and real world inhibitor screening practice in non-severe haemophilia A
  9. Wilate use in 47 children with von Willebrand disease: the North London paediatric haemophilia network experience
  10. Compliance, concordance and adherence: what are we talking about?
  11. Managing hemophilia: the role of mobile technology
  12. Increased burden on caregivers of having a child with haemophilia complicated by inhibitors
  13. Multimethodology research with boys with severe haemophilia
  14. Supporting adherence and improving quality of life in haemophilia care
  15. Haemophilia part 1: an introduction
  16. Self‐management and skills acquisition in boys with haemophilia
  17. The experience of girls and young Women with inherited bleeding disorders
  18. An action research study to explore the nature of the nurse consultant role in the care of children and young people
  19. Therapeutic use of arteriovenous fistula in children with haemophilia
  20. Assessment of Treatment Practice Patterns for Severe Hemophilia A: A Global Nurse Perspective
  21. Haemophilia A: meeting the needs of individual patients
  22. Experience of recombinant-activated factor VII to control bleeding in children with Glanzmann’s thrombasthenia
  23. The use of intermediate purity factor VIII concentrate BPL 8Y as prophylaxis and treatment in congenital thrombotic thrombocytopenic purpura
  24. Bruising and bleeding in infants and children – a practical approach
  25. The prevalence of the cysteine1584 variant of von Willebrand factor is increased in type 1 von Willebrand disease: co‐segregation with increased susceptibility to ADAMTS13 proteolysis but not clinical phenotype
  26. Non-accidental injury and the haematologist
  27. Rituximab in the treatment of alloimmune factor VIII and IX antibodies in two children with severe haemophilia
  28. The use of recombinant factor VIIa in children with inherited platelet function disorders
  29. Nurse prescribing: children’s nurses’ views
  30. Recombinant factor VIIa in the management of surgery and acute bleeding episodes in children with haemophilia and high responding inhibitors
  31. ‘A Higher Level of Practice’: What is it and what does it involve?
  32. Multidisciplinary teams in the United Kingdom: Problems and solutions