All Stories

  1. Building Better Medicine: Translational Justice and the Quest for Equity in US Healthcare
  2. Prenatal Care of Parents Who Continued Pregnancies With Down Syndrome, 2003–2022
  3. “Down Syndrome is Not a Curse”: parent Perspectives on the Medicalization of Down Syndrome
  4. Grounded in Reality: Integrating Community Values and Priorities of End Users in Human Gene Editing
  5. Race-Based Screening under the Public Health Ethics Microscope — The Case of Prostate Cancer
  6. P813: Experiences of Black pregnant people offered prenatal diagnosis in the setting of fetal anomalies: A qualitative study
  7. Translational Justice in Human Gene Editing: Bringing End User Engagement and Policy Together
  8. Views of parents of children with Down syndrome on Alzheimer’s disease vaccination
  9. Never “totally prepared”: Support groups on helping families prepare for a child with a genetic condition
  10. Impact of Telehealth on the Delivery of Prenatal Care During the COVID-19 Pandemic: Mixed Methods Study of the Barriers and Opportunities to Improve Health Care Communication in Discussions About Pregnancy and Prenatal Genetic Testing
  11. Beyond Abortion Clinics: How Overturning Roe Will Obstruct Life-Saving Research and Fetal Therapy
  12. Prenatal Care Healthcare Communication during the COVID-19 Pandemic: A Digital Divide Extending Beyond Technology Access (Preprint)
  13. What Really Matters Now in Prenatal Genetics
  14. Is preparation a good reason for prenatal genetic testing? Ethical and critical questions
  15. Evaluating the Risks and Benefits of Genetic and Pharmacologic Interventions for Down Syndrome: Views of Parents
  16. Prioritizing Women's Health in Germline Editing Research
  17. The personal utility of cfDNA screening: Pregnant patients' experiences with cfDNA screening and views on expanded cfDNA panels
  18. Attitudes Toward Hypothetical Uses of Gene-Editing Technologies in Parents of People with Autosomal Aneuploidies
  19. The clinical application of gene editing: ethical and social issues
  20. Response to Johansen Taber et al.
  21. Adherence of cell-free DNA noninvasive prenatal screens to ACMG recommendations
  22. What do we do now?: Responding to claims of germline gene editing in humans
  23. Weaponizing Hope: Sources of Hope, Unrealistic Optimism, and Denial
  24. Gene modification therapies: views of parents of people with Down syndrome
  25. Conflicts of interest in genetic counseling: persistent underlying questions
  26. Toward an Ethically Sensitive Implementation of Noninvasive Prenatal Screening in the Global Context
  27. Conflicts of interest in genetic counseling: acknowledging and accepting
  28. Dr. Pangloss's Clinic: Prenatal Whole Genome Sequencing and a Return to Reality
  29. Impact of the increased adoption of prenatal cfDNA screening on non-profit patient advocacy organizations in the United States
  30. “I think we’ve got too many tests!”: Prenatal providers’ reflections on ethical and clinical challenges in the practice integration of cell-free DNA screening
  31. Informed decision-making about prenatal cfDNA screening: An assessment of written materials
  32. Spanish- and English-Speaking Pregnant Women’s Views on cfDNA and Other Prenatal Screening: Practical and Ethical Reflections
  33. Cherchez la Femme: Reproductive CRISPR and Women's Choices
  34. “This lifetime commitment”: Public conceptions of disability and noninvasive prenatal genetic screening
  35. Noninvasive Prenatal Genetic Testing: Current and Emerging Ethical, Legal, and Social Issues
  36. Flexible positions, managed hopes: The promissory bioeconomy of a whole genome sequencing cancer study
  37. Old Questions, New Paradigms: Ethical, Legal, and Social Complications of Noninvasive Prenatal Testing
  38. “Don't Want No Risk and Don't Want No Problems”: Public Understandings of the Risks and Benefits of Noninvasive Prenatal Testing in the United States
  39. Findings of Nonparentage: A Case for Autonomy
  40. Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing
  41. What Research Ethics Should Learn from Genomics and Society Research: Lessons from the ELSI Congress of 2011
  42. Am I a control?: Genotype-driven research recruitment and self-understandings of study participants
  43. Research Participants' Perspectives on Genotype-Driven Research Recruitment
  44. The Meaning of Genetic Research Results: Reflections from Individuals with and without a Known Genetic Disorder
  45. “If I Could in a Small Way Help”: Motivations for and Beliefs About Sample Donation for Genetic Research
  46. Narrating Disability, Narrating Religious Practice: Reconciliation and Fragile X Syndrome