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  1. ‘Misdiagnosed and Misunderstood’: Insights into Rarer Forms of Dementia through a Stepwise Approach to Co-Constructed Research Poetry

    Article • Healthcare, February 2024, MDPI AG

    Dr Emilie Brotherhood

  2. ‘Communication is difficult’: Speech, language and communication needs of people with young onset or rarer forms of non‐language led dementia

    Article • International Journal of Language & Communication Disorders, February 2024, Wiley

    Dr Emilie Brotherhood

  3. How Do Care Partners of People with Rare Dementia Use Language in Online Peer Support Groups? A Quantitative Text Analysis Study

    Article • Healthcare, January 2024, MDPI AG

    Dr Emilie Brotherhood

  4. Adaptation of an eHealth Intervention: iSupport for Carers of People with Rare Dementias

    Article • International Journal of Environmental Research and Public Health, December 2023, MDPI AG

    Dr Emilie Brotherhood

  5. ‘Misdiagnosed and Misunderstood’: Insights into Rarer Forms of Dementia through a Stepwise Approach to Co-Constructed Research Poetry

    Article • November 2023, MDPI AG

    Dr Emilie Brotherhood

  6. "Better Living with Non-memory-led Dementia": protocol for a feasibility randomised controlled trial of a web-based caregiver educational programme

    Article • Pilot and Feasibility Studies, October 2023, Springer Science + Business Media

    Dr Emilie Brotherhood

  7. Situating support for people living with rarer forms of dementia

    Article • BMC Geriatrics, October 2023, Springer Science + Business Media

    Dr Emilie Brotherhood

  8. Development of an item pool for a patient reported outcome measure of resilience for people living with dementia

    Article • Journal of Patient-Reported Outcomes, September 2023, Springer Science + Business Media

    Dr Emilie Brotherhood

  9. Symptom‐led staging for semantic and non‐fluent/agrammatic variants of primary progressive aphasia

    Article • Alzheimer s & Dementia, August 2023, Wiley

    Dr Emilie Brotherhood

  10. Video Conferencing Peer Support and Rarer Forms of Dementia: An Exploration of Family Carers’ Positive Experiences

    Article • Qualitative Health Research, July 2023, SAGE Publications

    Dr Emilie Brotherhood

  11. “I felt like I had been put on the shelf and forgotten about” – lasting lessons about the impact of COVID-19 on people affected by rarer dementias

    Article • BMC Geriatrics, June 2023, Springer Science + Business Media

    Dr Emilie Brotherhood

  12. Better Living with Non-memory Led Dementia: protocol for a feasibility randomised controlled trial of a web-based caregiver educational programme

    Article • June 2023, Research Square

    Dr Emilie Brotherhood

  13. A mixed methods evaluation of a program exploring predeath grief and loss for carers of people with rarer dementias – CORRIGENDUM

    Article • International Psychogeriatrics, May 2023, Cambridge University Press

    Dr Emilie Brotherhood

  14. ‘I have never bounced back’: resilience and living with dementia

    Article • Aging & Mental Health, April 2023, Taylor & Francis

    Dr Emilie Brotherhood

  15. A mixed methods evaluation of a program exploring predeath grief and loss for carers of people with rarer dementias

    Article • International Psychogeriatrics, April 2023, Cambridge University Press

    Dr Emilie Brotherhood

  16. ‘The oxygen of shared experience’: exploring social support processes within peer support groups for carers of people with non-memory-led and inherited dementias

    Article • Aging & Mental Health, March 2023, Taylor & Francis

    Dr Emilie Brotherhood

  17. Symptom-led staging for primary progressive aphasia

    Article • March 2023, Cold Spring Harbor Laboratory Press

    Dr Emilie Brotherhood

  18. Talking Lines: A Research Protocol Integrating Verbal and Visual Narratives to Understand the Experiences of People Affected by Rarer Forms of Dementia

    Article • International Journal of Qualitative Methods, January 2023, SAGE Publications

    Dr Emilie Brotherhood

  19. ‘Like going into a chocolate shop, blindfolded’: What do people with primary progressive aphasia want from speech and language therapy?

    Article • International Journal of Language & Communication Disorders, November 2022, Wiley

    Dr Emilie Brotherhood

  20. A systematic review and psychometric evaluation of resilience measurement scales for people living with dementia and their carers

    Article • BMC Medical Research Methodology, November 2022, Springer Science + Business Media

    Dr Emilie Brotherhood

  21. Remote versus face-to-face neuropsychological testing for dementia research: a comparative study in people with Alzheimer’s disease, frontotemporal dementia and healthy older individuals

    Article • BMJ Open, November 2022, BMJ

    Dr Emilie Brotherhood

  22. How do the activities of daily living decline in people living with rarer dementias? A systematic review

    Article • September 2022, Cold Spring Harbor Laboratory Press

    Dr Emilie Brotherhood

  23. Peer support for people living with rare or young onset dementia: An integrative review

    Article • Dementia, September 2022, SAGE Publications

    Dr Emilie Brotherhood

  24. The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation

    Article • JMIR Research Protocols, July 2022, JMIR Publications Inc.

    Dr Emilie Brotherhood

  25. Neuropsychological assessments for dementia research in the COVID-19 era: comparing remote and face-to-face testing

    Article • April 2022, Cold Spring Harbor Laboratory Press

    Dr Emilie Brotherhood

  26. Singing and music making: physiological responses across early to later stages of dementia

    Article • Wellcome Open Research, February 2022, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  27. Developing Poetry as a Research Methodology with Rarer Forms of Dementia: Four Research Protocols

    Article • International Journal of Qualitative Methods, January 2022, SAGE Publications

    Dr Emilie Brotherhood

  28. The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation (Preprint)

    Article • December 2021, JMIR Publications Inc.

    Dr Emilie Brotherhood

  29. Singing and music making: physiological responses across early to later stages of dementia

    Article • Wellcome Open Research, October 2021, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  30. Arts-based interventions for people living with dementia: Measuring ‘in the moment’ wellbeing with the Canterbury Wellbeing Scales

    Article • Wellcome Open Research, September 2021, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  31. Development of the Video Analysis Scale of Engagement (VASE) for people with advanced dementia

    Article • Wellcome Open Research, June 2021, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  32. Singing and music making: physiological responses across early to later stages of dementia

    Article • Wellcome Open Research, June 2021, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  33. Development of the Video Analysis Scale of Engagement (VASE) for people with advanced dementia

    Article • Wellcome Open Research, May 2021, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  34. Arts-based interventions for people living with dementia: Measuring ‘in the moment’ wellbeing with the Canterbury Wellbeing Scales

    Article • Wellcome Open Research, May 2021, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  35. Arts-based interventions for people living with dementia: Measuring ‘in the moment’ wellbeing with the Canterbury Wellbeing Scales

    Article • Wellcome Open Research, March 2021, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  36. The impact of the first UK Covid-19 lockdown on carers and people living with low prevalence dementia: results from the Rare Dementia Support survey

    Article • December 2020, Cold Spring Harbor Laboratory Press

    Dr Emilie Brotherhood

  37. Development of the Video Analysis Scale of Engagement (VASE) for people with advanced dementia

    Article • Wellcome Open Research, October 2020, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  38. Non-memory led dementias: care in the time of covid-19

    Article • BMJ, June 2020, BMJ

    Dr Emilie Brotherhood

  39. Protocol for the Rare Dementia Support Impact study: RDS Impact

    Article • International Journal of Geriatric Psychiatry, February 2020, Wiley

    Dr Emilie Brotherhood

  40. Cardiac responses to viewing facial emotion differentiate frontotemporal dementias

    Article • Annals of Clinical and Translational Neurology, April 2018, Wiley

    Dr Emilie Brotherhood

  41. Non-Parametric Mixture Modelling and its Application to Disease Progression Modelling

    Article • April 2018, Cold Spring Harbor Laboratory Press

    Neil Oxtoby, Dr Emilie Brotherhood

  42. Motor signatures of emotional reactivity in frontotemporal dementia

    Article • Scientific Reports, January 2018, Springer Science + Business Media

    Dr Emilie Brotherhood

  43. Profiles in paint: contrasting responses to a common artistic exercise by people with different dementias

    Article • Arts & Health, November 2017, Taylor & Francis

    Dr Emilie Brotherhood

  44. Impaired Interoceptive Accuracy in Semantic Variant Primary Progressive Aphasia

    Article • Frontiers in Neurology, November 2017, Frontiers

    Dr Emilie Brotherhood

  45. Preparatory planning framework for Created Out of Mind: Shaping perceptions of dementia through art and science

    Article • Wellcome Open Research, November 2017, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  46. Auditory conflict and congruence in frontotemporal dementia

    Article • Neuropsychologia, September 2017, Elsevier

    Dr Emilie Brotherhood

  47. Functional neuroanatomy of speech signal decoding in primary progressive aphasias

    Article • Neurobiology of Aging, August 2017, Elsevier

    Dr Emilie Brotherhood

  48. Behavioural and neuroanatomical correlates of auditory speech analysis in primary progressive aphasias

    Article • Alzheimer s Research & Therapy, July 2017, Springer Science + Business Media

    Dr Emilie Brotherhood

  49. The clinical, neuroanatomical, and neuropathologic phenotype of TBK1‐associated frontotemporal dementia: A longitudinal case report

    Article • Alzheimer s & Dementia Diagnosis Assessment & Disease Monitoring, November 2016, Wiley

    Dr Emilie Brotherhood

  50. Serum neurofilament light chain protein is a measure of disease intensity in frontotemporal dementia

    Article • Neurology, September 2016, Wolters Kluwer Health

    Dr Emilie Brotherhood

  51. The Feedback-Related Negativity and the P300 Brain Potential Are Sensitive to Price Expectation Violations in a Virtual Shopping Task

    Article • PLoS ONE, September 2016, PLOS

    Dr Emilie Brotherhood

  52. The neural fate of neutral information in emotion-enhanced memory

    Article • Psychophysiology, March 2014, Wiley

    Dr Emilie Brotherhood