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  1. Development of a resource use measure to capture costs related to unpaid care for people living with non-memory led dementia: a modified Delphi study

    Article • BMJ Open, February 2026, BMJ

    Dr Emilie Brotherhood

  2. Factors associated with the use of digital health and wellbeing resources in non-memory-led dementias: A quantitative survey study. (Preprint)

    Article • JMIR Aging, October 2025, JMIR Publications Inc.

    Dr Emilie Brotherhood

  3. Factors influencing the use of digital health and wellbeing resources in non-memory-led dementias: A quantitative survey study. (Preprint)

    Article • October 2025, JMIR Publications Inc.

    Dr Emilie Brotherhood

  4. Better Living with Non-memory-led Dementia: study protocol for a randomised controlled trial of a web-based caregiver educational programme (BELIDE trial)

    Article • BMJ Open, September 2025, BMJ

    Dr Emilie Brotherhood

  5. Decline in activities of daily living in the rarer dementias

    Article • General Psychiatry, June 2025, BMJ

    Dr Emilie Brotherhood

  6. Risk of suicide in people living with dementia and comorbid mental health conditions: A systematic review and meta-analysis

    Article • Journal of Affective Disorders, June 2025, Elsevier

    Dr Emilie Brotherhood

  7. Cognitive stimulation in non-memory led dementias: A scoping review

    Article • Dementia, May 2025, SAGE Publications

    Dr Emilie Brotherhood

  8. The Road Less Travelled: A Micro-Costing Analysis of an Online Pre-Death Grief and Loss Programme for Carers of People with a Rare Dementia

    Article • INQUIRY The Journal of Health Care Organization Provision and Financing, April 2025, SAGE Publications

    Dr Emilie Brotherhood

  9. The psychometric properties of a new outcome measure of resilience for people living with dementia: The Bangor Dementia Resilience Scale

    Article • BMC Psychology, April 2025, Springer Science + Business Media

    Dr Emilie Brotherhood

  10. Dementia subtypes and suicidality: A systematic review and meta-analysis

    Article • Neuroscience & Biobehavioral Reviews, February 2025, Elsevier

    Dr Emilie Brotherhood

  11. The experience of “at‐risk” status for familial frontotemporal dementia (fFTD) and its impact on reproductive decision‐making: A qualitative study

    Article • Journal of Genetic Counseling, January 2025, Wiley

    Dr Emilie Brotherhood

  12. Preserved musical working memory and absolute pitch in posterior cortical atrophy

    Article • Cortex, December 2024, Elsevier

    Dr Emilie Brotherhood

  13. An international core outcome set for primary progressive aphasia (COS‐PPA): Consensus‐based recommendations for communication interventions across research and clinical settings

    Article • Alzheimer s & Dementia, November 2024, Wiley

    Professor Lyndsey Nickels, Dr Emilie Brotherhood

  14. Barriers and Facilitators to Participation in Clinical Trials Related to Familial Frontotemporal Dementia: A Qualitative Study

    Article • Molecular Genetics & Genomic Medicine, November 2024, Wiley

    Dr Emilie Brotherhood

  15. Effectiveness of psychological therapies for depression and anxiety in atypical dementia

    Article • Alzheimer s & Dementia, October 2024, Wiley

    Dr Emilie Brotherhood

  16. Suicide and dementia: A systematic review and meta-analysis of prevalence and risk factors

    Article • Ageing Research Reviews, September 2024, Elsevier

    Dr Emilie Brotherhood

  17. “It’s a Postcode Lottery”: How Do People Affected by Dementia in Wales Experience Their Diagnosis and Post-Diagnostic Support, and How May These Be Improved?

    Article • International Journal of Environmental Research and Public Health, May 2024, MDPI AG

    Dr Emilie Brotherhood

  18. Symptom‐based staging for logopenic variant primary progressive aphasia

    Article • European Journal of Neurology, April 2024, Wiley

    Dr Emilie Brotherhood

  19. ‘Misdiagnosed and Misunderstood’: Insights into Rarer Forms of Dementia through a Stepwise Approach to Co-Constructed Research Poetry

    Article • Healthcare, February 2024, MDPI AG

    Dr Emilie Brotherhood

  20. ‘Communication is difficult’: Speech, language and communication needs of people with young onset or rarer forms of non‐language led dementia

    Article • International Journal of Language & Communication Disorders, February 2024, Wiley

    Dr Emilie Brotherhood

  21. How Do Care Partners of People with Rare Dementia Use Language in Online Peer Support Groups? A Quantitative Text Analysis Study

    Article • Healthcare, January 2024, MDPI AG

    Dr Emilie Brotherhood

  22. Adaptation of an eHealth Intervention: iSupport for Carers of People with Rare Dementias

    Article • International Journal of Environmental Research and Public Health, December 2023, MDPI AG

    Dr Emilie Brotherhood

  23. ‘Misdiagnosed and Misunderstood’: Insights into Rarer Forms of Dementia through a Stepwise Approach to Co-Constructed Research Poetry

    Article • November 2023, MDPI AG

    Dr Emilie Brotherhood

  24. "Better Living with Non-memory-led Dementia": protocol for a feasibility randomised controlled trial of a web-based caregiver educational programme

    Article • Pilot and Feasibility Studies, October 2023, Springer Science + Business Media

    Dr Emilie Brotherhood

  25. Situating support for people living with rarer forms of dementia

    Article • BMC Geriatrics, October 2023, Springer Science + Business Media

    Dr Emilie Brotherhood

  26. Development of an item pool for a patient reported outcome measure of resilience for people living with dementia

    Article • Journal of Patient-Reported Outcomes, September 2023, Springer Science + Business Media

    Dr Emilie Brotherhood

  27. Symptom‐led staging for semantic and non‐fluent/agrammatic variants of primary progressive aphasia

    Article • Alzheimer s & Dementia, August 2023, Wiley

    Dr Emilie Brotherhood

  28. Video Conferencing Peer Support and Rarer Forms of Dementia: An Exploration of Family Carers’ Positive Experiences

    Article • Qualitative Health Research, July 2023, SAGE Publications

    Dr Emilie Brotherhood

  29. “I felt like I had been put on the shelf and forgotten about” – lasting lessons about the impact of COVID-19 on people affected by rarer dementias

    Article • BMC Geriatrics, June 2023, Springer Science + Business Media

    Dr Emilie Brotherhood

  30. Better Living with Non-memory Led Dementia: protocol for a feasibility randomised controlled trial of a web-based caregiver educational programme

    Article • June 2023, Research Square

    Dr Emilie Brotherhood

  31. A mixed methods evaluation of a program exploring predeath grief and loss for carers of people with rarer dementias – CORRIGENDUM

    Article • International Psychogeriatrics, May 2023, Cambridge University Press

    Dr Emilie Brotherhood

  32. ‘I have never bounced back’: resilience and living with dementia

    Article • Aging & Mental Health, April 2023, Taylor & Francis

    Dr Emilie Brotherhood

  33. A mixed methods evaluation of a program exploring predeath grief and loss for carers of people with rarer dementias

    Article • International Psychogeriatrics, April 2023, Cambridge University Press

    Dr Emilie Brotherhood

  34. ‘The oxygen of shared experience’: exploring social support processes within peer support groups for carers of people with non-memory-led and inherited dementias

    Article • Aging & Mental Health, March 2023, Taylor & Francis

    Dr Emilie Brotherhood

  35. Symptom-led staging for primary progressive aphasia

    Article • March 2023, Cold Spring Harbor Laboratory Press

    Dr Emilie Brotherhood

  36. Talking Lines: A Research Protocol Integrating Verbal and Visual Narratives to Understand the Experiences of People Affected by Rarer Forms of Dementia

    Article • International Journal of Qualitative Methods, January 2023, SAGE Publications

    Dr Emilie Brotherhood

  37. ‘Like going into a chocolate shop, blindfolded’: What do people with primary progressive aphasia want from speech and language therapy?

    Article • International Journal of Language & Communication Disorders, November 2022, Wiley

    Dr Emilie Brotherhood

  38. A systematic review and psychometric evaluation of resilience measurement scales for people living with dementia and their carers

    Article • BMC Medical Research Methodology, November 2022, Springer Science + Business Media

    Dr Emilie Brotherhood

  39. Remote versus face-to-face neuropsychological testing for dementia research: a comparative study in people with Alzheimer’s disease, frontotemporal dementia and healthy older individuals

    Article • BMJ Open, November 2022, BMJ

    Dr Emilie Brotherhood

  40. How do the activities of daily living decline in people living with rarer dementias? A systematic review

    Article • September 2022, Cold Spring Harbor Laboratory Press

    Dr Emilie Brotherhood

  41. Peer support for people living with rare or young onset dementia: An integrative review

    Article • Dementia, September 2022, SAGE Publications

    Dr Emilie Brotherhood

  42. The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation

    Article • JMIR Research Protocols, July 2022, JMIR Publications Inc.

    Dr Emilie Brotherhood

  43. Neuropsychological assessments for dementia research in the COVID-19 era: comparing remote and face-to-face testing

    Article • April 2022, Cold Spring Harbor Laboratory Press

    Dr Emilie Brotherhood

  44. Singing and music making: physiological responses across early to later stages of dementia

    Article • Wellcome Open Research, February 2022, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  45. Developing Poetry as a Research Methodology with Rarer Forms of Dementia: Four Research Protocols

    Article • International Journal of Qualitative Methods, January 2022, SAGE Publications

    Dr Emilie Brotherhood

  46. The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation (Preprint)

    Article • December 2021, JMIR Publications Inc.

    Dr Emilie Brotherhood

  47. Singing and music making: physiological responses across early to later stages of dementia

    Article • Wellcome Open Research, October 2021, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  48. Arts-based interventions for people living with dementia: Measuring ‘in the moment’ wellbeing with the Canterbury Wellbeing Scales

    Article • Wellcome Open Research, September 2021, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood, Sabina Hulbert

  49. Development of the Video Analysis Scale of Engagement (VASE) for people with advanced dementia

    Article • Wellcome Open Research, June 2021, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  50. Singing and music making: physiological responses across early to later stages of dementia

    Article • Wellcome Open Research, June 2021, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  51. Development of the Video Analysis Scale of Engagement (VASE) for people with advanced dementia

    Article • Wellcome Open Research, May 2021, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  52. Arts-based interventions for people living with dementia: Measuring ‘in the moment’ wellbeing with the Canterbury Wellbeing Scales

    Article • Wellcome Open Research, May 2021, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood, Sabina Hulbert

  53. Arts-based interventions for people living with dementia: Measuring ‘in the moment’ wellbeing with the Canterbury Wellbeing Scales

    Article • Wellcome Open Research, March 2021, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood, Sabina Hulbert

  54. The impact of the first UK Covid-19 lockdown on carers and people living with low prevalence dementia: results from the Rare Dementia Support survey

    Article • December 2020, Cold Spring Harbor Laboratory Press

    Dr Emilie Brotherhood

  55. Augmenting Dementia Cognitive Assessment With Instruction-Less Eye-Tracking Tests

    Article • IEEE Journal of Biomedical and Health Informatics, November 2020, Institute of Electrical & Electronics Engineers (IEEE)

    Dr Emilie Brotherhood

  56. Development of the Video Analysis Scale of Engagement (VASE) for people with advanced dementia

    Article • Wellcome Open Research, October 2020, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  57. Non-memory led dementias: care in the time of covid-19

    Article • BMJ, June 2020, BMJ

    Dr Emilie Brotherhood

  58. Sequences of cognitive decline in typical Alzheimer's disease and posterior cortical atrophy estimated using a novel event‐based model of disease progression

    Article • Alzheimer s & Dementia, June 2020, Wiley

    Dr Emilie Brotherhood

  59. Protocol for the Rare Dementia Support Impact study: RDS Impact

    Article • International Journal of Geriatric Psychiatry, February 2020, Wiley

    Dr Emilie Brotherhood

  60. Using Music to Develop a Multisensory Communicative Environment for People with Late-Stage Dementia

    Article • The Gerontologist, December 2019, Oxford University Press (OUP)

    Dr Emilie Brotherhood

  61. Cardiac responses to viewing facial emotion differentiate frontotemporal dementias

    Article • Annals of Clinical and Translational Neurology, April 2018, Wiley

    Dr Emilie Brotherhood

  62. Non-Parametric Mixture Modelling and its Application to Disease Progression Modelling

    Article • April 2018, Cold Spring Harbor Laboratory Press

    Neil Oxtoby, Dr Emilie Brotherhood

  63. Motor signatures of emotional reactivity in frontotemporal dementia

    Article • Scientific Reports, January 2018, Springer Science + Business Media

    Dr Emilie Brotherhood

  64. Profiles in paint: contrasting responses to a common artistic exercise by people with different dementias

    Article • Arts & Health, November 2017, Taylor & Francis

    Dr Emilie Brotherhood

  65. Impaired Interoceptive Accuracy in Semantic Variant Primary Progressive Aphasia

    Article • Frontiers in Neurology, November 2017, Frontiers

    Dr Emilie Brotherhood

  66. Preparatory planning framework for Created Out of Mind: Shaping perceptions of dementia through art and science

    Article • Wellcome Open Research, November 2017, Faculty of 1000, Ltd.

    Dr Emilie Brotherhood

  67. Auditory conflict and congruence in frontotemporal dementia

    Article • Neuropsychologia, September 2017, Elsevier

    Dr Emilie Brotherhood

  68. Functional neuroanatomy of speech signal decoding in primary progressive aphasias

    Article • Neurobiology of Aging, August 2017, Elsevier

    Dr Emilie Brotherhood

  69. Behavioural and neuroanatomical correlates of auditory speech analysis in primary progressive aphasias

    Article • Alzheimer s Research & Therapy, July 2017, Springer Science + Business Media

    Dr Emilie Brotherhood

  70. The clinical, neuroanatomical, and neuropathologic phenotype of TBK1‐associated frontotemporal dementia: A longitudinal case report

    Article • Alzheimer s & Dementia Diagnosis Assessment & Disease Monitoring, November 2016, Wiley

    Dr Emilie Brotherhood

  71. Serum neurofilament light chain protein is a measure of disease intensity in frontotemporal dementia

    Article • Neurology, September 2016, Wolters Kluwer Health

    Dr Emilie Brotherhood

  72. The Feedback-Related Negativity and the P300 Brain Potential Are Sensitive to Price Expectation Violations in a Virtual Shopping Task

    Article • PLOS One, September 2016, PLOS

    Dr Emilie Brotherhood

  73. The neural fate of neutral information in emotion-enhanced memory

    Article • Psychophysiology, March 2014, Wiley

    Dr Emilie Brotherhood