All Stories

  1. Characterizing sexual abuse in a national survey of adults with spina bifida

    Article • Journal of Pediatric Urology, December 2026, Elsevier

    Betsy D Hopson

  2. Redefining transition: Self-efficacy in urologic care

    Article • Journal of Pediatric Urology, August 2026, Elsevier

    Dr Jeffrey P Blount, Betsy D Hopson

  3. Psychometric Evaluation of Sexual Knowledge and Self-Efficacy Components of the SPARKS Survey for Adults with Spina Bifida

    Article • Journal of Pediatric Rehabilitation Medicine, March 2026, SAGE Publications

    Dr Jeffrey P Blount, Betsy D Hopson

  4. Healthcare transition in spina bifida: A national mixed method study

    Article • Health Care Transitions, January 2026, Elsevier

    Betsy D Hopson

  5. Participant feedback on a health care transition conference for youth with medical complexity

    Article • Health Care Transitions, January 2026, Elsevier

    Betsy D Hopson

  6. TRAQ in clinical practice: A narrative review for health care transition readiness

    Article • Health Care Transitions, January 2026, Elsevier

    Betsy D Hopson

  7. Association between orthopedic manifestations and tethered cord release in patients with spina bifida: a survival analysis

    Article • Child s Nervous System, May 2025, Springer Science + Business Media

    Dr Jeffrey P Blount, Betsy D Hopson

  8. Reproductive Education and Sexual Abuse Among Individuals With Spina Bifida: A Mixed Methods Study

    Article • Archives of Rehabilitation Research and Clinical Translation, April 2025, Elsevier

    Dr Jeffrey P Blount, Betsy D Hopson

  9. Treatment of sleep-disordered breathing among children with myelomeningocele

    Article • Journal of Neurosurgery Pediatrics, November 2024, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr Jeffrey P Blount, Betsy D Hopson

  10. Development and content validation of a survey assessing domains of sexual and reproductive health in adults with spina bifida

    Article • Journal of Pediatric Rehabilitation Medicine, November 2024, SAGE Publications

    Dr Jeffrey P Blount, Betsy D Hopson

  11. Editorial. Two novel models to optimize transitional care in spina bifida: the patient as provider and the congenital neurosurgeon in active collaboration

    Article • Neurosurgical FOCUS, August 2024, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr Jeffrey P Blount, Betsy D Hopson

  12. The role of a dedicated transition process from pediatric to adult interdisciplinary care for persons with spina bifida

    Article • Neurosurgical FOCUS, August 2024, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr Jeffrey P Blount, Betsy D Hopson

  13. Transition mentorship for spina bifida patients with the JUMP program: a pilot study

    Article • Neurosurgical FOCUS, August 2024, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr Jeffrey P Blount, Betsy D Hopson

  14. Health care transition models in spina bifida care: evidence-based lessons in support of neurosurgical practice

    Article • Neurosurgical FOCUS, August 2024, Journal of Neurosurgery Publishing Group (JNSPG)

    Betsy D Hopson

  15. Neurosurgical management of Myelomeningocele in premature infants: a case series

    Article • Child s Nervous System, July 2024, Springer Science + Business Media

    Dr Jeffrey P Blount, Betsy D Hopson

  16. Body Composition and Energy Expenditure in Youth With Spina Bifida: Protocol for a Multisite, Cross-Sectional Study

    Article • JMIR Research Protocols, July 2024, JMIR Publications Inc.

    Betsy D Hopson

  17. Evaluation of multidisciplinary high-risk pregnancy clinic for myelomeningocele

    Article • Child s Nervous System, April 2024, Springer Science + Business Media

    Dr Jeffrey P Blount, Betsy D Hopson

  18. Neurosurgical Management of Myelomeningocele in Premature Infants: A Case Series

    Article • April 2024, Springer Science + Business Media

    Betsy D Hopson

  19. Causes of death among people with myelomeningocele: A multi-institutional 47-year retrospective study

    Article • Journal of Pediatric Rehabilitation Medicine, December 2023, IOS Press

    Dr Jeffrey P Blount, Betsy D Hopson

  20. Body Composition and Energy Expenditure in Youth With Spina Bifida: Protocol for a Multisite, Cross-Sectional Study (Preprint)

    Article • September 2023, JMIR Publications Inc.

    Betsy D Hopson

  21. First-time tethered cord release among adults with myelomeningocele: an analysis of people in the National Spina Bifida Patient Registry

    Article • Journal of Neurosurgery Spine, June 2023, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr Jeffrey P Blount, Betsy D Hopson

  22. What has changed in pediatric neurosurgical care in spina bifida? A 30-year UAB/Children’s of Alabama observational overview

    Article • Child s Nervous System, May 2023, Springer Science + Business Media

    Dr Jeffrey P Blount, Betsy D Hopson

  23. Improving Bowel Management in Children With Spina Bifida

    Article • Journal of Pediatric Gastroenterology and Nutrition, May 2023, Wiley

    Betsy D Hopson

  24. The development of a transition medical home utilizing the individualized transition plan (ITP) model for patients with complex diseases of childhood

    Article • Disability and Health Journal, April 2023, Elsevier

    Dr Jeffrey P Blount, Betsy D Hopson

  25. Functional level of lesion scale: Validating fourteen years of research with the national spina bifida patient registry

    Article • Journal of Pediatric Rehabilitation Medicine, December 2022, IOS Press

    Dr. Brandon G Rocque, Dr Jeffrey P Blount, Betsy D Hopson

  26. Time to shunt failure in children with myelomeningocele: an analysis of the National Spina Bifida Patient Registry

    Article • Journal of Neurosurgery Pediatrics, November 2022, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr Jeffrey P Blount, Betsy D Hopson

  27. Telemedicine and Spina Bifida Transition: A Pilot Randomized Trial

    Article • World Neurosurgery, November 2022, Elsevier

    Betsy D Hopson

  28. Editorial. Social determinants in care for dysraphism

    Article • Journal of Neurosurgery Pediatrics, April 2022, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr Jeffrey P Blount, Betsy D Hopson

  29. Determination of anatomic level of myelomeningocele by prenatal ultrasound

    Article • Child s Nervous System, February 2022, Springer Science + Business Media

    Dr Jeffrey P Blount, Betsy D Hopson

  30. Scope of care in the first four years of life for individuals born with myelomeningocele: A single institution experience1

    Article • Journal of Pediatric Rehabilitation Medicine, December 2021, IOS Press

    Betsy D Hopson, Dr Jeffrey P Blount

  31. A qualitative interview study on successful pregnancies in women with spina bifida

    Article • Journal of Pediatric Urology, November 2021, Elsevier

    Dr Jeffrey P Blount, Betsy D Hopson

  32. Caring for the Child with Spina Bifida

    Article • Pediatric Clinics of North America, August 2021, Elsevier

    Dr Jeffrey P Blount, Betsy D Hopson

  33. Tethered spinal cord among individuals with myelomeningocele: an analysis of the National Spina Bifida Patient Registry

    Article • Journal of Neurosurgery Pediatrics, May 2021, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr Jeffrey P Blount, Betsy D Hopson

  34. Shunt failure clusters: an analysis of multiple, frequent shunt failures

    Article • Journal of Neurosurgery Pediatrics, March 2021, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr. Brandon G Rocque, Dr Jeffrey P Blount, Betsy D Hopson

  35. Hydrocephalus in Spina Bifida

    Article • Neurology India, January 2021, Medknow

    Dr Jeffrey P Blount, Betsy D Hopson

  36. Prevalence of Sleep Disordered Breathing in Children With Myelomeningocele

    Article • Neurosurgery, December 2020, Oxford University Press (OUP)

    Dr Jeffrey P Blount, Betsy D Hopson

  37. Neurosurgery guidelines for the care of people with spina bifida

    Article • Journal of Pediatric Rehabilitation Medicine, December 2020, IOS Press

    Dr Jeffrey P Blount, Betsy D Hopson

  38. Care coordination guidelines for the care of people with spina bifida

    Article • Journal of Pediatric Rehabilitation Medicine, December 2020, SAGE Publications

    Betsy D Hopson

  39. Feasibility of a Commercially Available Virtual Reality System to Achieve Exercise Guidelines in Youth With Spina Bifida: Mixed Methods Case Study

    Article • JMIR Serious Games, September 2020, JMIR Publications Inc.

    Betsy D Hopson

  40. Feasibility of a Commercially Available Virtual Reality System to Achieve Exercise Guidelines in Youth With Spina Bifida: Mixed Methods Case Study (Preprint)

    Article • May 2020, JMIR Publications Inc.

    Betsy D Hopson

  41. Health care transition in pediatric neurosurgery: a consensus statement from the American Society of Pediatric Neurosurgeons

    Article • Journal of Neurosurgery Pediatrics, May 2020, Journal of Neurosurgery Publishing Group (JNSPG)

    Mark Hamilton, Dr Jeffrey P Blount, Michael A. Williams, Betsy D Hopson

  42. Letter to the Editor. Fetal closure of myelomeningocele

    Article • Journal of Neurosurgery Pediatrics, March 2020, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr. Brandon G Rocque, Dr Jeffrey P Blount, Betsy D Hopson

  43. Lessons learned from a blended telephone/e-health platform for caregivers in promoting physical activity and nutrition in children with a mobility disability

    Article • Disability and Health Journal, January 2020, Elsevier

    Betsy D Hopson

  44. Transition Readiness Assessment Questionnaire Spina Bifida (TRAQ-SB) specific module and its association with clinical outcomes among youth and young adults with spina bifida

    Article • Journal of Pediatric Rehabilitation Medicine, December 2019, IOS Press

    Betsy D Hopson

  45. The reliability and validity of a newly developed spina bifida-specific Transition Readiness Assessment Questionnaire: Transition Readiness Assessment Questionnaire-supplement (TRAQ-SB)

    Article • Journal of Pediatric Rehabilitation Medicine, December 2019, IOS Press

    Betsy D Hopson

  46. Care management and contemporary challenges in spina bifida: a practice preference survey of the American Society of Pediatric Neurosurgeons

    Article • Journal of Neurosurgery Pediatrics, November 2019, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr Jeffrey P Blount, Betsy D Hopson

  47. Development of an evidence-based individualized transition plan for spina bifida

    Article • Neurosurgical FOCUS, October 2019, Journal of Neurosurgery Publishing Group (JNSPG)

    Betsy D Hopson, Dr Jeffrey P Blount

  48. Program Evaluation of Camp V.I.P: Promoting Self-confidence and Independence for Patients with Spina Bifida

    Article • Journal of Pediatric Nursing, July 2019, Elsevier

    Dr Jeffrey P Blount, Betsy D Hopson

  49. Age and factors associated with self-clean intermittent catheterization in patients with spina bifida

    Article • Journal of Pediatric Rehabilitation Medicine, December 2018, IOS Press

    Betsy D Hopson

  50. Skin breakdown of the feet in patients with spina bifida: Analysis of risk factors

    Article • Journal of Pediatric Rehabilitation Medicine, December 2018, IOS Press

    Betsy D Hopson

  51. The development of a lifetime care model in comprehensive spina bifida care

    Article • Journal of Pediatric Rehabilitation Medicine, December 2018, IOS Press

    Dr Jeffrey P Blount, Betsy D Hopson

  52. Decompression for Chiari malformation type II in individuals with myelomeningocele in the National Spina Bifida Patient Registry

    Article • Journal of Neurosurgery Pediatrics, December 2018, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr. Brandon G Rocque, Dr Jeffrey P Blount, Betsy D Hopson

  53. Treated hydrocephalus in individuals with myelomeningocele in the National Spina Bifida Patient Registry

    Article • Journal of Neurosurgery Pediatrics, December 2018, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr. Brandon G Rocque, Dr Jeffrey P Blount, Betsy D Hopson

  54. Reducing inequities in preventable neural tube defects: the critical and underutilized role of neurosurgical advocacy for folate fortification

    Article • Neurosurgical FOCUS, October 2018, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr Jeffrey P Blount, Betsy D Hopson

  55. Intradural spine surgery may not carry an increased risk of shunt revision compared with extradural spine surgery in pediatric patients with myelomeningocele

    Article • Journal of Neurosurgery Pediatrics, January 2018, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr Jeffrey P Blount, Betsy D Hopson

  56. Genetic epidemiology of neural tube defects

    Article • Journal of Pediatric Rehabilitation Medicine, December 2017, SAGE Publications

    Betsy D Hopson

  57. Predictors of permanent disability among adults with spinal dysraphism

    Article • Journal of Neurosurgery Spine, August 2017, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr. Brandon G Rocque, Dr Jeffrey P Blount, Betsy D Hopson

  58. Surveillance survey of family history in children with neural tube defects

    Article • Journal of Neurosurgery Pediatrics, June 2017, Journal of Neurosurgery Publishing Group (JNSPG)

    Dr. Brandon G Rocque, Dr Jeffrey P Blount, Betsy D Hopson

  59. A comparison of the MOMS trial results to a contemporaneous, single-institution, postnatal closure cohort

    Article • Child s Nervous System, December 2016, Springer Science + Business Media

    Dr. Samuel McClugage, Dr Jeffrey P Blount, Betsy D Hopson

  60. Rate of shunt revision as a function of age in patients with shunted hydrocephalus due to myelomeningocele

    Article • Neurosurgical FOCUS, November 2016, Journal of Neurosurgery Publishing Group (JNSPG)

    Betsy D Hopson, Dr. Brandon G Rocque, Dr Jeffrey P Blount, Esther Dupepe

  61. Sleep-disordered breathing in patients with myelomeningocele

    Article • Journal of Neurosurgery Pediatrics, July 2015, Journal of Neurosurgery Publishing Group (JNSPG)

    Betsy D Hopson, Dr. Brandon G Rocque, Dr Jeffrey P Blount

  62. Assessing health-related quality of life in children with spina bifida

    Article • Journal of Neurosurgery Pediatrics, February 2015, Journal of Neurosurgery Publishing Group (JNSPG)

    Betsy D Hopson, Dr. Brandon G Rocque, Dr Jeffrey P Blount